redux: “the rough patch at the turn up the hill”

Note: this was posted five years ago and refers to a surgery performed six years ago. I refer to an essay I’d written about our shared experience of surgery — one enduring it, the other witnessing — and sewing my way through the process, and how I thought I might make a chapbook of the essay. I never did but the essay was included in Sharp Notions: Essays from the Stitching Life, edited by Marita Dachsel and Nancy Lee, published in 2023 by Arsenal Pulp Press.

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stitch

A year ago this hour I was in my rooms on the UBC campus, waiting to hear from the surgeon who’d just replaced both of my husband’s hips. One hip was wonky and then with the long wait time for orthopaedic surgery, his second hip also deteriorated. When he was called late last September and told to prepare for both the surgery and the recuperation afterwards, we were filled with optimism. We got the equipment we needed, arranged our house for safe recovery, and made sure the cupboards were full. (Wine rack too.)

A year ago this afternoon the surgeon called me to tell me how well the procedure had gone. I walked over to the UBC hospital, a walk I was to take many times over the next ten days, and went through the rigamarole (stopped to answer questions about my health, putting on a clean mask to replace the clean mask I was wearing, signed the form to indicate the time I was visiting, sterilized my hands in front of the security officer at the desk) to visit John in the recovery ward. He was groggy but excited. Two new hips! The prospect of a return to our long walks up the mountain. Easier travel once the pandemic situation allowed that again. He was a little concerned that he could feel and move his left foot but his right foot was still asleep. The recovery nurse assured him it would also wake up once the anaesthetic had worn off.

I remember walking back to my rooms and calling our children. I also wrote a group email to extended family and friends to share the good news. But by the next morning, a year tomorrow, the story had changed. The right foot was still asleep and that was because John had suffered a compression injury to his sciatic nerve and its branch, the peroneal nerve, affecting his ability to raise his right foot. The chance of this happening was one in a thousand. Over the next week, consulting with the excellent physiotherapists who helped him to move around with a walker, to use stairs, to seat himself and then rise from that position, and with the surgeon who visited several times, as well as with other orthopaedic surgeons who also came to talk to us, we learned that the prognosis was a bit uncertain. The nerves would have to regenerate and that happens slowly. It can take two years. If it happens at all, because there’s only a 50% chance that the nerves will in fact completely regenerate.

Whatever happens we will do our best. When it’s light out, the trees brilliant gold and deep orange, the house finches busy at the work of opening maple seeds, I am ready for anything. But when the weight settles, I pick up my quilt and stitch free-hand spirals into the sashing between the log-cabin blocks. The process of moving out from the centre and then letting the thread find its way out into the open space is calming, in the way I suspect meditation might be. My meditations are of the practical sort though; they always have been. Kneading dough, weeding, watering tomatoes and easing their unruly stems around strings leading them upwards. So I’ll stitch and hope that the threads will take me–us–in the direction we need to go now. Sure-footed or not.

The following week was strange. I was alone (because I’d taken advice to keep myself and John as safe as possible from infections, including Covid of course), walking back and forth to the hospital with a flask of Camino hot chocolate for John (because honestly the food was quite awful and he needed something warm and rich), news from home, and well, just to be company for him in his room overlooking trees.

that week

Back in my rooms, I was working on two quilts. One of them, in the photograph above, had a complicated pattern of spirals in its sashing; I’d sit by a big window and sew. And think. I had a lot of thinking to do. About whether we were ready, about how to get us home, about the winter ahead. Now that it’s a year later and we got through that winter with all its equipment and further medical dramas (because only a few days after we’d returned home, we had to go down to the Sechelt hospital where John was admitted for an issue related to the surgery but also complicated, needing many tests and drug trials) and physiotherapy sessions, acupressure sessions, etc., I am reading a long essay I wrote during and after the winter. I wanted to record what was a life-altering event in our particular lives and I wanted to find the lessons in it. Because there were lessons, ones I might have anticipated and ones I didn’t. I’m thinking of making the essay into a little book, like the book I made of my essay, “Museum of the Multitude Village”.

The quilts were finished and went to their new homes — Anik’s house in Dordrecht, the Netherlands; and Cristen’s house in Edmonton. A year later, John’s foot has come a long way in its own recovery, although he will probably always have a slightly idiosyncratic gait. Think of Inspector Morse, if you are a fan of that television series. (In real life, John Thaw had a condition called drop foot, which is essentially what John has now.) Our long walks up the mountain aren’t quite what they were. Rough ground presents difficulties so we try to find places to walk where the terrain is even. But I have to say that otherwise, things go on as they always did. We swim — daily in summer, three times a week after the end of September. We built a greenhouse last spring. Over the past couple of weeks, John split and stacked three and half cords of firewood. Every few days he goes down our long driveway with a rake and a pick to level out the rough patch at the turn up the hill.

When I remember the week after the surgery, I remember the swelling, the bruising, the uncertainty. But also a kind of quiet beauty in the days. Leaves were turning and falling. There were finches in the trees. In the night I had a small lamp by my bed and I read Anne Boyer’s The Undying, finding in its dark record of Boyer’s harrowing experience of breast cancer a coded message that went right to my heart. You must pay attention, you must care from the bottom of your frightened heart. There is something to be learned from this. Find out, tell what it is.

The bruising is phenomenal. Your flanks, both of them, are deep blue and purple, streaked with red; they’re swollen, the swelling extending down your legs to your feet.

The trees are turning, the birds so lively in their branches, and even the rain against the window reminds me of time spinning from my spools of thread, drops finding a trail over the silver glass.

To take a set of objects and actions from one system and reclassify these as elements in another system is like fortune-telling.

cords

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“The body of thought to carry the spirit of the thing.” (Anne Boyer)

rusknyk

Four days after John’s surgery at UBC Hospital, I was in the UBC bookstore, looking for something to read. I’d finished the two New Yorkers I brought with me and then I finished Ben Lerner’s Topeka (a wonderful novel) and my nights alone in a suite near the hospital were pretty much sleepless. I knew Anne Boyer’s poetry and I receive her Mirabilary (“love letters about thinking”) via email and I know I read somewhere (though I can’t find the source now) that she thinks that women are finding new forms for their work that sort of elide genres. So when I saw The Undying: Pain, Vulnerability, Medicine, Art, Time, Dreams, Data, Exhaustion, Cancer, and Care on the table, I bought it. I’d read the section that appeared in the New Yorker last year and I knew it was about her experience with an aggressive form of triple-negative breast cancer. In some ways it might not have been the best choice for a woman to read in the night, alone, as she waited for her husband to recover enough from a double hip surgery, with complications, to bring him home again, but in so many ways it was perfect company.

I’ve long believed that essays are an ideal form for me, though if your own view of the essay as formal, adhering to the rules we learned in school, paying strict attention to opening paragraphs, thesis, grammar, punctuation, syntax, and (when required) citing source material, then I’m not your writer. I think of the form as endlessly open and capacious, willing to accept experiments, bars of music, instructions for grafting, soup recipes, the history of Ukrainian embroidery, the life cycle of a blue mussel, meditations on mortality, dissertations on historical events, dream diaries, and colour wheels. Anything else? Whatever a writer needs.

What I try to do in my writing is that if I perceive my own weakness or my own occluded vision or some moment in which I am not up to the task of discerning some truth or seeking an idea, I just include that in the writing. I just include in the writing an admission of what I can’t do. I don’t ever want to be a writer whose writing presumes to have all the answers or to speak authoritatively on anything. (interview in The Believer)

Reading The Undying, which is a book-length essay of deep and thoughtful dimensions, was richly satisfying, although sad enough that I found myself weeping as I turned its pages in the narrow circle of light from my reading lamp. It’s a brave book. To track the course of your cancer treatment as you worry about income, the little hoard of paid sick days running out like sand through an hourglass, the loss of your fingernails, your hair, the potential damage–cognitive, physical– from Adriamycin, a chemical administered by nurses in hazmat suits, well, I was stunned by Boyer’s focus and range of scholarship. Her guides, John Donne, Audre Lorde, Aelius Aristides, her friends (the ones who haven’t abandoned her).

Although I finished the book a few days ago, I’ve been keeping it on my desk. There’s so much to learn from it. From the writing, clean and radiant; from the structure of the essay itself, resembling from time to time a section of one of the great epic poems, where the hero(ine) descends to the underworld and faces what is to be found there and returns, forever changed; and from the inclusion of so many sources that I want to follow up with. As someone who has a collection of essays currently under consideration and for whom the best way to cite source material has been (in the past) problematic–I’m not a scholar and have found that using formal citation styles to be awkward–I was excited to see how Anne Boyer has solved that problem for herself: a simplified Notes at the end of the book as well as a good bibliography. I’m glad to have a precedent for this way of citing quoted material and that this book won the 2020 Pulitzer Prize for General Nonfiction makes it a very good precedent indeed.

I loved what she says in The Believer interview (cited above) about the novel she is currently working on. This is so congenial to me. Sometimes when the material I have at hand leads me into fictional territory, I wonder if I have the right grammar for it. I do my best. But honestly? “The body of thought to carry the spirit of the thing.” Oh yes.

That’s what I’m learning about, going deeper and containing more. You have to think about the tissue between things. Like the way people move through space. In novels, which never happens anywhere else, somebody has to move from one room to another room. So there’s all these prepositions, extra conjunctions, dialogue. Dealing with all these parts, tissue, ligaments, as opposed to poetry’s beautiful condensation of experience, or the essay’s allowance of the body of thought to carry the spirit of the thing.